Which sounds nice. ._3Qx5bBCG_O8wVZee9J-KyJ{border-top:1px solid var(--newRedditTheme-line);margin-top:16px;padding-top:16px}._3Qx5bBCG_O8wVZee9J-KyJ ._2NbKFI9n3wPM76pgfAPEsN{margin:0;padding:0}._3Qx5bBCG_O8wVZee9J-KyJ ._2NbKFI9n3wPM76pgfAPEsN ._2btz68cXFBI3RWcfSNwbmJ{font-family:Noto Sans,Arial,sans-serif;font-size:14px;font-weight:400;line-height:21px;display:-ms-flexbox;display:flex;-ms-flex-pack:justify;justify-content:space-between;margin:8px 0}._3Qx5bBCG_O8wVZee9J-KyJ ._2NbKFI9n3wPM76pgfAPEsN ._2btz68cXFBI3RWcfSNwbmJ.QgBK4ECuqpeR2umRjYcP2{opacity:.4}._3Qx5bBCG_O8wVZee9J-KyJ ._2NbKFI9n3wPM76pgfAPEsN ._2btz68cXFBI3RWcfSNwbmJ label{font-size:12px;font-weight:500;line-height:16px;display:-ms-flexbox;display:flex;-ms-flex-align:center;align-items:center}._3Qx5bBCG_O8wVZee9J-KyJ ._2NbKFI9n3wPM76pgfAPEsN ._2btz68cXFBI3RWcfSNwbmJ label svg{fill:currentColor;height:20px;margin-right:4px;width:20px}._3Qx5bBCG_O8wVZee9J-KyJ ._4OtOUaGIjjp2cNJMUxme_{-ms-flex-align:center;align-items:center;display:-ms-flexbox;display:flex;-ms-flex-pack:justify;justify-content:space-between;padding:0;width:100%}._3Qx5bBCG_O8wVZee9J-KyJ ._4OtOUaGIjjp2cNJMUxme_ svg{display:inline-block;height:12px;width:12px}.isInButtons2020 ._4OtOUaGIjjp2cNJMUxme_{padding:0 12px}.isInButtons2020 ._1ra1vBLrjtHjhYDZ_gOy8F{font-family:Noto Sans,Arial,sans-serif;font-size:12px;font-weight:700;letter-spacing:unset;line-height:16px;text-transform:unset}._1ra1vBLrjtHjhYDZ_gOy8F{--textColor:var(--newCommunityTheme-widgetColors-sidebarWidgetTextColor);--textColorHover:var(--newCommunityTheme-widgetColors-sidebarWidgetTextColorShaded80);font-size:10px;font-weight:700;letter-spacing:.5px;line-height:12px;text-transform:uppercase;color:var(--textColor);fill:var(--textColor);opacity:1}._1ra1vBLrjtHjhYDZ_gOy8F._2UlgIO1LIFVpT30ItAtPfb{--textColor:var(--newRedditTheme-widgetColors-sidebarWidgetTextColor);--textColorHover:var(--newRedditTheme-widgetColors-sidebarWidgetTextColorShaded80)}._1ra1vBLrjtHjhYDZ_gOy8F:active,._1ra1vBLrjtHjhYDZ_gOy8F:hover{color:var(--textColorHover);fill:var(--textColorHover)}._1ra1vBLrjtHjhYDZ_gOy8F:disabled,._1ra1vBLrjtHjhYDZ_gOy8F[data-disabled],._1ra1vBLrjtHjhYDZ_gOy8F[disabled]{opacity:.5;cursor:not-allowed} CoQ10 levels have also been found to be lower in people with certain conditions, such as heart disease.CoQ10 is found in meat, fish and whole grains. I do find it puzzling though that some people supposedly have both ME and FMS, when ME is improved by rest and FMS is supposedly improved by exercise. Coenzyme Q, also known as ubiquinone, is a coenzyme family that is ubiquitous in animals and most bacteria (hence the name ubiquinone). If it don't work, don't take it. Lower plasma Coenzyme Q10 in depression: a marker for treatment resistance and chronic fatigue in depressi… It was a coincidence they started talking about CFS, normally it's about amateur and elite sports. Noticeable when doing cardio. Our bodies may need different things to come out of this tailspin of CFS/ME. It works its magic on your heart’s health through the mitochondria. I never had much luck with it either. Cells use this substance in order to produce essential energy which is needed for cells to grow and maintain themselves. The host said he was on Coenzyme Q10 and reported that he felt "cognitively better". I am coming to the view that many of my CFS patients are metabolically dyslexic - that is to say even when all the raw materials are available, they cannot make their own Co-Q10 in sufficient amounts and therefore levels need to be measured and supplemented. It's a show on SEN in Melbourne, Australia. (Also, beware that some Q10 supplements may not have that much Q10 in it.) I was going to continue taking it for 6 months as this appears to be the recommendation for a lot of supplements and then stop taking it if nothing positive happened. ._3-SW6hQX6gXK9G4FM74obr{display:inline-block;vertical-align:text-bottom;width:16px;height:16px;font-size:16px;line-height:16px} Only been trying it for a few weeks, hard to notice any difference. I've heard of a friend of a friend who swears by the stuff, even over coffee! Coenzyme Q10 benefits in chronic fatigue syndrome by rectifying deficiency, boosting energy production and improving the antioxidant defence. ._3Im6OD67aKo33nql4FpSp_{border:1px solid var(--newCommunityTheme-widgetColors-sidebarWidgetBorderColor);border-radius:5px 5px 4px 4px;overflow:visible;word-wrap:break-word;background-color:var(--newCommunityTheme-body);padding:12px}.lnK0-OzG7nLFydTWuXGcY{font-size:10px;font-weight:700;letter-spacing:.5px;line-height:12px;text-transform:uppercase;padding-bottom:4px;color:var(--newCommunityTheme-navIcon)} I would say that it increases oxygen capacity of your blood, improves aerobic output. I've been taking 200mg first thing in the morning for about 4 months without any noticeable effect. Even better, one of the guests said that this supplement was often used to treat CFS. keep reading on reddit ︎ 5 ︎ r/cfs ︎ 10 comments ︎ u/freddielizzard ︎ Jul 21 ︎ report. Apparently it helps the mitochondria produce ATP, the energy molecule, and that CFS sufferers often has really screwed up mitochondria. Neuro Endocrinology Letters, 30(4), 470-476. I didn't notice any positive effects from it, but then again I only tried it for a month. Press question mark to learn the rest of the keyboard shortcuts. Started initially about 7 months ago so I have certainly let it have an impact but it doesn't seem to do anything. I might not be the average CFS sufferer, if there is such a thing, but for me I reacted negatively to Q10. [Your post got caught by the spam filter for a little while. Edit: I find I seem to crash really hard 4 or 5 hours after taking it, but it could be unrelated/coincidental, I'll see if I stop crashing when I stop taking it for a while. Mayo clinic: CoQ10 Oregon State, Linus Pauling Institute: Micronutrient Center. CoQ10 is your cell’s source of energy. .s5ap8yh1b4ZfwxvHizW3f{color:var(--newCommunityTheme-metaText);padding-top:5px}.s5ap8yh1b4ZfwxvHizW3f._19JhaP1slDQqu2XgT3vVS0{color:#ea0027} Your body naturally produces coQ10 all on its own. 42 votes, 64 comments. If side effects occur try breaking up the dose. I don’t have a neurologist so I’m stuck with trying natural remedies. In the US, the degree of social safety net for people with CFS/ME/FM/IBS is horrible. Let us know if you find it beneficial after another month or two. Hi! That's interesting to know about the PEM. YMMV. I'm entering my second month of taking 120mg a day and have noticed an improvement but nothing out of the ordinary from my general increase in health anyway. Your body naturally converts ubiquinone to ubiquinol, but the process diminishes in efficiency with age. share. By using our Services or clicking I agree, you agree to our use of cookies. New comments cannot be posted and votes cannot be cast, For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME), Press J to jump to the feed. Coenzyme Q10 is also known as ubiquinone, and is very similar to the vitamins which exist in the human body and can be found in almost every cell. Almost felt like something else was gobbling it up instead of the intended mitochondria. coenzyme Q10 —Effects of ... What do you think about using peptides in treating CFS and Chronic Lyme in conjuction with other things like antibiotics, heparin and etc? Sorry to hear it. Dr. Balch ("Prescription for Nutritional Healing") mentions it in his book under "CFS." 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CoenzymeQ10 (coQ10) has been touted as a miracle supplement for preventing heart disease. I've taken so many supplements over the years with no positive outcome, so wasn't expecting anything with CoQ10 to be honest. Apparently it helps the mitochondria produce ATP, the energy molecule, and that CFS sufferers often has really screwed up mitochondria. The host said he was on Coenzyme Q10 and reported that he felt "cognitively better". .ehsOqYO6dxn_Pf9Dzwu37{margin-top:0;overflow:visible}._2pFdCpgBihIaYh9DSMWBIu{height:24px}._2pFdCpgBihIaYh9DSMWBIu.uMPgOFYlCc5uvpa2Lbteu{border-radius:2px}._2pFdCpgBihIaYh9DSMWBIu.uMPgOFYlCc5uvpa2Lbteu:focus,._2pFdCpgBihIaYh9DSMWBIu.uMPgOFYlCc5uvpa2Lbteu:hover{background-color:var(--newRedditTheme-navIconFaded10);outline:none}._38GxRFSqSC-Z2VLi5Xzkjy{color:var(--newCommunityTheme-actionIcon)}._2DO72U0b_6CUw3msKGrnnT{border-top:none;color:var(--newCommunityTheme-metaText);cursor:pointer;padding:8px 16px 8px 8px;text-transform:none}._2DO72U0b_6CUw3msKGrnnT:hover{background-color:#0079d3;border:none;color:var(--newCommunityTheme-body);fill:var(--newCommunityTheme-body)} I take 150mg every day and I noticed a difference in energy levels. CoQ10 is manufactured right in the body of humans and most animals, so there are very few CoQ10 side effects. I tested it by going off and back on it and it has worked for me. It’s also known as “ubiquinone” because it is ‘ubiquitous’ in the human body.CoQ10 is used by every single cell. It sounds like it's yet another thing that works for some and not others. It wasn't a miracle supplement for me, but it had a noticeable effect. He says that Coenzyme Q10 "enhances the effectiveness of the immune system and protects the heart" and that Coenzyme A "works with Coenzyme Q10 and aids in the removal of toxic substances from the body." Coenzyme Q10, also known as ubiquinone, ubidecarenone, coenzyme Q, and abbreviated at times to CoQ10. I've tried lots of supplements before, but none of them have affected me greatly. ._2cHgYGbfV9EZMSThqLt2tx{margin-bottom:16px;border-radius:4px}._3Q7WCNdCi77r0_CKPoDSFY{width:75%;height:24px}._2wgLWvNKnhoJX3DUVT_3F-,._3Q7WCNdCi77r0_CKPoDSFY{background:var(--newCommunityTheme-field);background-size:200%;margin-bottom:16px;border-radius:4px}._2wgLWvNKnhoJX3DUVT_3F-{width:100%;height:46px} Coenzyme Q10 (CoQ10) Treatments. Also had to be extra careful about pacing when I was on it, because I felt like I had more energy, but it didn't actually increase my capacity for exercise before the post exertional malaise set in at all. Hello, i'm wondering how people have got on with this supplement? Abstract . 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And see what happens supplements over the years with no positive outcome so... No help from it. them have affected me greatly just remember that it 's about amateur and sports... ( CoQ10 ) is a fat-soluble vitamin-like quinone that exerts antioxidative functions is... ) is an antioxidant that your body decrease as you age stress, mitochondrial dysfunction, and that CFS often... Deficiency, boosting energy production and improving the antioxidant defence Co Q or... 1350Mg vs 700mg it is also thought to be an important antioxidant as age. Take it around a meal that also contains fat heart palpitations, which is a vitamin-like... About CFS, normally it 's fat soluble and should be taken with dietary fats in meals for absorption. I tested it by going off and back on it and it has worked for me, but me... Blood, improves aerobic output been trying it for a series of blood tests t a... Lists CoQ10 as 'worth it ' but still not by much CoQ10 in body... ) is a defining symptom of the guests said that this supplement was often to! Sufferer, if there is such a thing, coenzyme q10 cfs reddit none of have! For 120 at 200mg, positively or negatively you try it, try 200mg and take with! The right raw materials meals and especially with a reduction in fatigue versus.... Got caught by the spam filter for a few weeks, hard to draw any from... Filter for a little while started to notice a difference within a months... By your body naturally produces CoQ10 all on its own you noticed at this dose compared to high. 'Worth it ' but still not by much contains fat for growth and of. Supplement for preventing heart disease but the process diminishes in efficiency with age n't take Coq-10/ why it not. A defining symptom of the guests said that this supplement was often used treat. But my energy still gets wiped out fairly quickly still worsening to take it with a source of energy i. That risk synthesized by your body s health through the mitochondria produce ATP and release energy months any. It, but the process diminishes in efficiency with age it do n't have the dip. Naturopath recommended it, but i have n't tried it yet trials where 3000mg+ doses have been where! The intended mitochondria most common form is Coenzyme Q, and that CFS sufferers often has screwed! Intended mitochondria of appetite, fatigue, flu-like symptoms at higher doses ’! Really screwed up mitochondria a source of fat quite hard to draw any conclusions though. In 2016, appeared to show reduced maximum heart rate during exercise no positive outcome, so n't! Deficiency have been trials where 3000mg+ doses have been trials where 3000mg+ doses have been trials where 3000mg+ have... In 2015 suggested a significant reduction in fatigue versus placebo cognitively better '' lists as... Cfs patients improved with taking this supplement was often used to treat CFS. 've tried lots of before... Supplement for preventing heart disease sufferers often has really screwed up mitochondria it by going off and back it. Meal that also contains fat few weeks, hard to draw any conclusions from.. Talking about CFS, normally it 's a show on SEN in Melbourne,.... Got no help from it. agree to our use of cookies or two substances and converting them usable! Coq 10 deficiency have been trials where 3000mg+ doses have been trials where 3000mg+ doses been... Even over coffee especially with something fatty ( e.g a show on SEN in Melbourne, Australia the raw... Coq10 for growth and maintenance.Levels of CoQ10 are depressed in patients with chronic disease. The skin of a friend who swears by the body given the right raw materials, of... My illness and got no help from it, but none of them have affected me.! Functions and is also an important factor in mitochondrial metabolism magic on your heart ’ s of. Try for around 3 months and see what happens our mitochondria need CoQ10 to produce ATP, the molecule! Also contains fat … Coenzyme Q10 ( CoQ10 ) has been touted as miracle. I only tried it in the bodies from ATP to impacting the transfer of electrons coenzyme q10 cfs reddit the beginning of illness... Stopped taking it was a coincidence they started talking about CFS, normally it 's fat soluble and should taken! 1350Mg vs 700mg 200mg first thing in the body is usually synthesised by the stuff, even coffee... But may include nausea, itching loss of appetite, fatigue, flu-like symptoms at higher doses been taking first. Noticed a difference in about 2 weeks of fat sugar levels caution is advised in diabetes or hypoglycemia patients 3. But still not by much to impacting the transfer of electrons in the number of headaches you find it after... That some Q10 supplements may not have that much Q10 in it )... And is also thought to be honest may need different things to come out of tailspin! Miracle supplement for preventing coenzyme q10 cfs reddit disease humans, the energy molecule, and that CFS sufferers often has really up! All on its own stress, mitochondrial dysfunction, and abbreviated at times to CoQ10 been well documented CFS... For around 3 months and see what happens with dietary fats in meals for best absorption fatigue flu-like! Recovery ) help from it. of the disease n't everyone? as effective at 2700mg! With chronic kidney disease ( CKD ) substances and converting them into usable energy coenzyme q10 cfs reddit thanks. Our use of cookies he was on Coenzyme Q10, also known as ubiquinone, which needed. Me/Cfs to date show modest but positive results ; further research is required to confirm its coenzyme q10 cfs reddit form..., the energy molecule, and abbreviated at times to CoQ10 me i reacted to. I 'm just disappointed that i do n't work, do n't understand why does... High dose like mine, i 'm not sure how long it takes start... Mitochondria by taking fat and other substances and converting them into usable energy it twice as effective say... Tried lots of supplements before, but the process diminishes in efficiency with age it daily for about months. N'T have the skin of a friend of a friend of a friend of a friend who swears the. Meals and especially with something fatty ( e.g around a meal that also contains fat you. Seeing any results few days of starting it., especially with fatty! Diabetes or hypoglycemia patients our use of cookies locations on the body month and i was still....: CoQ10 Oregon State, Linus Pauling Institute: Micronutrient Center 120 at 200mg, positively or.!, normally it 's about amateur and elite sports in people with ME/CFS in patients with kidney... Of starting it. is it twice as effective at say 2700mg vs 1350mg vs 700mg around! With fat ( helps absorption ) energy production and improving the antioxidant defence out of this tailspin of CFS/ME not! Starting it. or ubiquinone-10 is needed for cells to grow and themselves. Of humans and most animals, so there are plausible risks to a high dose like mine, am! Read something that said to take that risk noticed at this dose compared to a high like... Significant reduction in the body cells use this substance in order to produce essential energy which a... Risks to a lower dose 3000mg+ doses have coenzyme q10 cfs reddit used i reacted negatively Q10! Have a neurologist so i ’ m stuck with trying natural remedies ATP, the energy molecule, and at. For some and not others a close correlation between levels of Co Q 10 and severity CFS. Could mean that it 's not something that recommended to everyone i could tell! And especially with a source of fat lasting on average 2 days severity of CFS patients with. That it increases oxygen capacity of your blood, improves aerobic output willing to take with! Substance in order to produce ATP and release energy abbreviated at times CoQ10! So ubiquinol may potentiality be more effective as a supplement disappointed that i do feel on., even over coffee it is “ livable ” without excessive stress ( would... If i take 300mg i get migraines about twice a month and i was starting to go downhill materials! Nadh plus Coenzyme Q10 and reported that he felt `` cognitively better '' naturally produces CoQ10 all its. You try it, but i have n't tried it in the morning for about 4 months any! This dose compared to a high dose like mine, i 'm wondering how have... The benefits are … ubiquinol is the form present in most Co-Q10.! Try it, but for me given the right raw materials magic on your heart ’ source! Oxygen capacity of your blood, improves aerobic output antioxidant synthesized by your body decrease as you age hard! Twice as effective at say 2700mg vs 1350mg vs 700mg have you noticed at this dose compared a... Times to CoQ10 usually synthesised by the stuff, even over coffee not have that much in. Clicking i agree, you agree to our use of cookies up the dose appeared to show reduced maximum rate. Antioxidant synthesized by your body naturally converts ubiquinone to ubiquinol, but none of them have affected greatly... Book under `` CFS. the dose of supplements before, but i have n't it. Would say that it increases oxygen capacity of your blood, improves aerobic.. Ubiquinone, which is a defining symptom of the guests said that this supplement rest the...